Play With The Angels, Baby Bien

 

Bien Louis Cruz Fermin

September 24, 2011 - August 23, 2012

 

 

"An Angel in the book of life wrote down baby Bien's birth.

And whispered as she closed the book

"too beautiful for earth."

 

 

~@~

 



Bien's CT Scan

In preparation for Bien's upcoming liver transplantation in Chang Gung Memorial Hospital in Taiwan, all his laboratory results were shipped for assessment. So far, his results are okay except that Dr. Chen found out that he now has Pulmonary Consolidation.

Pulmonary Consolidation is

 a region of (normally compressible) lung tissue that has filled with liquid, a condition marked by induration (swelling or hardening of normally soft tissue) of a normally aerated lung. It is considered a radiologic sign. Consolidation occurs through accumulation of inflammatory cellular exudate in the alveoli and adjoining ducts. Simply, it is defined as alveolar space that contains liquid instead of gas. The fluid can be pulmonary edema, inflammatory exudate, pus, inhaled water, or blood (from bronchial tree or hemorrhage from a pulmonary artery). It is clinically important in pneumonia: the signs of lobar pneumonia are characteristic and clinically referred to as consolidation.

Bien will be treated of his Pulmonary Consolidation as soon as he arrives in Taiwan. He should be clear of any other illnesses before the doctors perform the transplant.

As of the moment, they are now preparing documents for their trip to Taiwan most probably towards the end of August. If things work out as planned, transplant will be around the first half of September.

Let us keep praying for baby Bien.

Little Acts of Kindness: Sharon Kasama Mo, Kapatid

For those who were unable to watch last July 30 episode of Sharon Kasama Mo, Kapatid, it featured the story of Mang Roger and Bien Louis.

Mang Roger is an iconic figure in San Beda. He is a magbabalot. But he is not an ordinary magbabalot. He is famous in San Beda not only because of his balot and chicharon. He is a man who spreads happiness and inspires students as well as faculty members in San Beda.

Another story is about baby Bien's call for help for his liver transplantation fundraising campaign. Witness how Sharon Kasama Mo, Kapatid has given Bien a FIGHTING CHANCE.

Bien Louis on Sharon Kasama Mo, Kapatid

At 10 months old now, Bien's physical feature has changed a lot. His stomach is noticeably bigger because of his biliary atresia. He has also lost weight. His arms and legs are so thin. He cries a lot. The fear of him having complications gives his parents sleepless nights.

It is ideal that Bien undergo liver transplant before he reach the age of 1. With only two months to go, they need a miracle to raise the funds needed for his operation.

The family never stopped praying and believing.

 

Putting social network into good use, Bien's family started the fundraising campaign via twitter. God loves Bien so much he sent an angel -- Ms Sharon Cuneta-Pangilinan. Ms Sharon was one of the few people who retweeted Bien's appeal for help. She even requested her media friends to please feature Bien's story in their column. Mr Bayani San Diego Jr immediately respond to Ms Sharon's call. He wrote an article on Philippine Daily Inquirer "Mega's Wish".  

Despite all the efforts by the family to raise money, there is still not enough to pay for the operation. But, they did not lose hope. Then one afternoon, a staff from Sharon Kasama Mo, Kapatid contacted Bien's parents.

 Bien was featured in their episode this afternoon "Little Acts of Kindness". A lot of people were touched with Bien's story.

 Inspired by the coin cans that Bien's dad placed on some establishments at SM Taytay, the audience passed around Bien's coin can.

 There is also a MEGAcan at the studio for Baby Bien which they aim to fill with bills and coins.

Mr. Manny V Pangilinan (MVP), Chairman of TV5, pledged P1,000,000. Two very good friends of Ms. Sharon who preferred to be anonymous also donated $20,000 and $10,000. 

 

Ms Sharon also ordered A Gift of Life t-shirts for her fans and staff.

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Sharon Kasama Mo, Kapatid

Mon - Fri, 4:30 - 5:30

Channel 5

Twitter: @SharonKasamaMo

FB:  https://www.facebook.com/SharonKMK

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Bien's New Clothes from Moose Gear

  

Thank you very much Moose Gear for the clothes given during his parents' guesting at Sharon Kasama Mo, Kapatid. Baby Bien loves them all.

Sharon Kasama Mo, Kapatid

A touching story about Bien's fundraising campaign for his liver transplantation will be featured by Ms Sharon Cuneta-Pangilinan on Sharon Kasama Mo, Kapatid.

We invite you to watch on Monday, July 30 at 4:30 in the afternoon Channel 5.

Climb for a Cause: Manabu Peak

 

Thank you very much to the people who joined the Manabu Peak climb for my liver transplantation fundraising campaign. I am very grateful to Mr. Bok Madriaga for organizing this event. 

I would also like to thank these people who supported the event --

 

* Aldrin Paralejas * Danny Consigna * Marlon Grienver Gutana * Andrei Bernadette Enriquez *
* Bebe Thonz Castro * Alice Familar * Hteya Parel * Guillan Paul Parel * Jewellou Manoguid *

* Alain De Leon *  Franklin Tating * Arnell Manata * Louie Angelo Cruz * Effie Galang *
* Gerry Orvina * Marlon Gonzales * Alvin Licuanan * Mobius Infinity *

* Roel Celino * Mary Ann Bustamante * Lhen Batica * Cenon Alejandro Paje * 

* Princess Tobias * Christine Gida * Lorecel Cabangca *

 

May you be showered with blessings :D

 

 

Climb for a Cause: Mt Maculot

I would like to thank Mr Bok Madriaga for organizing a fundraising for my liver transplantation. This is the first batch who climbed Mt Maculot in Cuenca, Batangas last June 30. The next batch will be on July 7 at Manabu Peak.

Thank you also to

 * Mark Tam * Van Antonio * Mico Marcos *

* Anna Intalan * John Clemen Ner * Ruby Ann Butihen *

* Rommel Sandoval * MarkGlenn Blas * Ron Alfred Jomoc *

* Carmilou Peralta * Aldrin Cruzado * 

 

 

 

And of course, my sponsors  a BIG THANK YOU!

Bien's Liver CT Angiogram

In preparation for Bien's liver transplantation, he underwent Liver CT Angiogram this morning at Makati Medical Center. Thank you again Mr Ogie Alcasid and Mrs Regine Velasquez-Alcasid for helping baby Bien with this procedure. May God continuously bless you.

Brave baby!

 

Every Centavo Counts

Thank You very much Let's Face It SM Taytay, Hainanese Delights SM Taytay, Bacolod Chicken Inasal SM Taytay and PC Domain for allowing us to place coin cans in your store.

Climb for a Cause

ITINERARY and EXPENSES

Manabu Peak
Sto. Tomas, Batangas
Jump-off point: Sulok, Brgy. Sta Cruz, Sto. Tomas
LLA: 13.9777°, 121.2413°, 760 MASL
Days required / Hours to summit: 1 day / 1-2 hours
Specs: Minor climb, Difficulty 2/9, Trail class 1-2

DAY 1
06:00 Assembly @ LRT Buendia Station
07:00 ETD Buendia to Lipa (transportation P120)
09:00 ETA Lipa City buy food and pack lunch
10:00 ETD Going to Bgy Sulok (transportation P50)
10:30 ETA Brgy Sulok, Register Bgy Hall
11:00 Start Trek
11:15 ETA Buko Juice Manabu Zoo
11:30 ETA Station 3 Ilog
11:45 ETA Station 4 Kubo
12:00 ETA Station 5 Tatay Perying
01:00 ETA Campsite; lunch ,rest
02:00 Pitch tent and Explore peak
05:00 Prepare dinner
06:00 Dinner time
07:00 Program
08:00 Socials
10:00 Lights off

Day 2

0600 Wake Up Call; Prepare Breakfast
0700 Summit Assault
0800 Back to campsite
0900 Break Camp
1000 Start Decend; Traverse to groto
1100 ETA Groto
1115 ETA Station 4 Kubo
1130 ETA Station 3 Ilog
1145 ETA Station 2; Buko Juice; Manabu Zoo
1200 ETA Jump-off
0100 Optional Lunch; Tidy up
0200 ETD for Lipa
1400 ETA Lipa; Board bus bound to ortigas

Estimated Budget

Buendia to Lipa 120 x 2 = 240
Trike 50 + 30 = 80
Registration =20
Food = 200
total = 500

Registration (free Tshirt and Bandana) P499

Total = P1,000

Thank You, XTRAXERVICE 103.5 WowFM

listening to 103.5

Thank You very much Ms. Francine Prieto @norWEIRDgian Mr. Mike Mutia @miketest123 and Mr Joshua Ylaya @joshuaylaya for mentioning my website and fundraising campaign at XTRAXERVICE.

Thank You, Governor Ynares

Thank you Governor Ynares for helping us secure permit from DSWD for us to be able to distribute COIN CANS for my fundraising. Thank you also for offering the Ynares Center in Antipolo and Pasig for FREE should we need a venue for fundraising.

God Bless.

Lab Tests and More Lab Tests

In preparation for my liver transplant in Taiwan, I need to go through various laboratory tests to check that everything will work out fine. We will be sending the results to Taiwan for their evaluation.

Me and my mom still need to have the Liver CT-Angiogram that will cost P35,000 each. Hopefully, more help will come our way because my fund gets depleted because of the routine lab tests, maintenance medicines and hospital confinements.

Glad we're done with these tests:

Laboratory Tests:
 
 Hepa Profile

• HBsAg
• anti-HBs
• anti-HBc
• anti-HCV

  Blood Chemistry

• CBC/DC
• Blood typing
• Albumin
•  AST
• ALT
• Total and direct Bilirubin
• Creatinine
• INR/Protime
• AFP Liver Ultrasound

Kailanman, Kapatid

Thank you very much Ms Twinks Macaraig and the people from Aksyon TV for supporting our "A Gift of Life A Fighting Chance Fundraising Campaign.

Bien's Summer

Bien @ 7 months

Home from the Hospital

I was supposed to have a short vacation at my relatives' house. Mommy was excitedly packing our clothes. But then the doctor called. The blood tests result showed I've got low hemoglobin count. I need to go to the hospital. I was at the  Philippine Children Medical Center for three days. I had blood transfusions and albumin.

I am very happy still because I was still able to go on a very short vacation. We went to my relatives' house on Easter Sunday. Stayed there overnight. 

I got this baby bouncer as a gift. I love it sooo much.

Buy A SHIRT. Save a LIFE. For Kids Now Available :D

Thank You, Baby Nate

This is a gift from Baby Nate. I don't just play here. I also love SLEEPING here!

A Twitter Story

She tweeted. God answered.

Three weeks ago, my mom and dad received a text message from Mr Ogie Alcasid. He told them he wanted to help us. Mom was surprised. We asked my mom's godmother if she knows anything about it because she was the one who started this fundraising campaign. She said she tweeted Mr Ogie and asked if he could retweet my story to his followers.

Me and my parents were invited today by Mr and Mrs Ogie Alcasid to their home. They learned about the fundraising campaign for my liver transplant and offered us help. I also met baby Nate. He is a lucky baby because he has kindhearted parents. I am sure he will also grow up like them.

This is a gift from baby Nate. I'm so excited to play with this. I'll ask my mommy to take a picture of me.

my mom's brother, mr ogie, my mom's godmother, me and mommy,  ms regine, my daddy

They also prayed for me. I know I will be healed.

Thank you Mr Ogie Alcasid, Ms Regine V Alcasid and baby Nate.

Pathological Diagnosis

Medical Certificate

Clinical Abstract

Thank You, Manila Vice Mayor Isko Moreno

Thank you for your help. For retweeting my story and for buying the fundraising T-shirts. I hope I will meet you when I grow up.

Buy A Shirt. Save A Life

Please support our Fundraising Campaign for baby Bien's Liver Transplantation. Buy this t-shirt for only P350 and help save the life of Bien.

Adult sizes are available in S, M, L and XL.

We will also be selling soon sizes for KIDS.
*we send via courier (shipping cost c/o buyer)

A Mother's Love

She carried me in her womb for nine months. She is a part of me as I am a part of her. She gave me the gift of life. 

She will give me a part of her liver for my transplantation. Together we will fight for another chance. Again, she will give me a gift of life.

A Fighting Chance Fundraising T-Shirt

I was wondering why my relatives were so busy in front of the computer last week. I also see them chatting a lot and making phone calls discussing something. I found out later they were busy designing a shirt for my fundraising. I'll let you take a peek ...

My mom has already ordered the t-shirt for printing. I'm really excited. I hope they make a baby size. They will be selling the shirt starting next week.

Check Up Day

Happy Friday!

I went to the Philippine Children Medical Center today for my check up. I'm glad the weather is wonderful today. Yesterday it was raining the whole day. 

I was behaved the whole time the doctor is checking me. See, I'm just lying there like a good baby. Funny, my daddy and the doctor seem like they agreed on what color to wear today!

The doctor is checking the wound from my liver biopsy operation two weeks ago.

 

That's my wound. Can you guess how many inches? That scar is a remembrance of my bravery.

My doctor said I need to continue with my medication while waiting for the liver transplantion.

Good Night, everyone!